Publications and Documents

The SHIP Blueprint

Appendices to the blueprint:

Appendix 1: Examples of record linkage research
Appendix 2: Membership of SHIP
Appendix 3: International Advisory Board Members
Appendix 4: Consultation in creating SHIP Blueprint
Appendix 5: SHIP Blueprint Expert Groups
Appendix 6: Roles and Responsibilities of Data Controllers
Appendix 7: SHIP Guiding Principles and Best Practices
Appendix 8: Assessment questions for safe havens and governing bodies to ask themselves
Appendix 9: Questions for members of the public and their representatives to ask if they want to assess standards of governance

SHIP Working Paper 1: Information governance of use of health-related data in medical research in Scotland: current practices and future scenarios by Graeme Laurie and Nayha Sethi

SHIP Working Paper 2: Information governance of use of health-related data in medical research in Scotland: Towards a Good Governance Framework by Graeme Laurie and Nayha Sethi

SHIP Public Engagement: Summary of early focus group findings

SHIP Public Engagement: What makes researchers trustworthy - a workshop summary

SHIP Public Engagement: Your Data and Health Research: SHIP Public Workshops

SHIP Privacy Impact Assessment: a living instrument document

Colhoun HM; SDRN Epidemiology Group (2009) Use of insulin glargine and cancer incidence in Scotland: a study from the Scottish Diabetes Research Network Epidemiology Group. Diabetologia. 2009;52(9):1755-65.

Preiss D, Welsh P, Murray HM, Shepherd, J, Packard, C, Macfarlane, P, Cobbe, S, Ford, I, and Sattar, N. (2010) Fasting plasma glucose in non-diabetic participants and the risk for incident cardiovascular events, diabetes, and mortality: results from WOSCOPS 15-year follow-up(dagger) European Heart Journal Volume: 31 Issue: 10 Pages: 1230-1236 DOI: 10.1093/eurheartj/ehq095 Published: MAY 2010

Brian Williams, Jon Dowell, Gerry Humphris, Themessl-Huber Markus, Rosemary Rushmer, Ian Ricketts, Paul Boyle and Frank Sullivan (2010) Developing a longitudinal database of routinely recorded primary care consultations linked to service use and outcome data. Social Science & Medicine, 2010;70(3):473-478.

de Lusignan S, Sullivan F, Krause P (2010) Editorial: Vault, cloud and agent: choosing strategies for quality improvement and research based on routinely collected health data. Inform Prim Care. 2010;18(1):1-4.

Walker J, Livingstone S, Colhoun H, Lindsay R, McKnight J, Morris A, Petrie J, Philip S, Sattar N, Wild S (2011) Effect of Socioeconomic Status on Mortality Among People With Type 2 Diabetes: A study from the Scottish Diabetes Research Network Epidemiology Group. Diabetes Care May 2011 vol. 34 no. 5 1127-1132

Govan L, Wu O, Briggs A, Colhoun HM, McKnight JA, Morris AD, Pearson DW, Petrie JR, Sattar N, Wild SH, Lindsay RS; Scottish Diabetes Research Network Epidemiology Group. (2011)
Inpatient costs for people with type 1 and type 2 diabetes in Scotland: a study from the Scottish Diabetes Research Network Epidemiology Group. Diabetologia. 2011 Aug;54(8):2000-8. Epub 2011 May 24.

Govan L, Wu O, Briggs A, Colhoun HM, Fischbacher CM, Leese GP, McKnight JA, Philip S, Sattar N, Wild SH, Lindsay RS; on behalf of the Scottish Diabetes Research Network Epidemiology Group. (2011) Achieved Levels of HbA1c and Likelihood of Hospital Admission in People With Type 1 Diabetes in the Scottish Population: A study from the Scottish Diabetes Research Network Epidemiology Group.
Diabetes Care. 2011 Sep;34(9):1992-1997. Epub 2011 Jul 25.

Aitken, M; Cunningham-Burley, S; Pagliari, C (2011) Public Responses To The Scottish Health Informatics Programme: Preferences And Concerns Around The Use Of Personal Medical Records In Research Journal of Epidemiology and Community Health Volume: 65 Supplement: 1 Pages: A27-A27 DOI: 10.1136/jech.2011.142976a.71 Published: AUG 2011

Logue J, Walker JJ, Colhoun HM, Leese GP, Lindsay RS, McKnight JA, Morris AD, Pearson DW, Petrie JR, Philip S, Wild SH, Sattar N; Scottish Diabetes Research Network Epidemiology Group.
Do men develop type 2 diabetes at lower body mass indices than women? Diabetologia. 2011 Dec;54(12):3003-6. Epub 2011 Sep 30.

Anwar H, Fischbacher CM, Leese GP, Lindsay RS, McKnight J, Wild SH; on behalf of the Scottish Diabetes Research Network Epidemiology Group. (2011) Assessment of the under-reporting of diabetes in hospital admission data: a study from the Scottish Diabetes Research Network Epidemiology Group. Diabetic Medicine. 2011 Dec;28(12):1514-1519.

Looker HC, Nyangoma SO, Cromie D, Olson JA, Leese GP, Black M, Doig J, Lee N, Lindsay RS, McKnight JA, Morris AD, Philip S, Sattar N, Wild SH, Colhoun HM; on behalf of the Scottish Diabetic Retinopathy Screening Collaborative and the Scottish Diabetes Research Network Epidemiology Group. Diabetic retinopathy at diagnosis of type 2 diabetes in Scotland. Diabetologia. 2012 Sep;55(9):2335-2342. Epub 2012 Jun 12

Govan L, Maietti E, Torsney B, Wu O, Briggs A, Colhoun HM, Fischbacher CM, Leese GP, McKnight JA, Morris AD, Sattar N, Wild SH, Lindsay RS; on behalf of the Scottish Diabetes Research Network (SDRN) Epidemiology Group*. The effect of deprivation and HbA(1c) on admission to hospital for diabetic ketoacidosis in type 1 diabetes. Diabetologia. 2012 Sep;55(9):2356-2360. Epub 2012 Jun 26.

H. M. Colhoun & S. J. Livingstone & H. C. Looker & A. D. Morris & S. H. Wild & R. S. Lindsay & C. Reed & P. T. Donnan & B. Guthrie & G. P. Leese & J. McKnight & D. W. M. Pearson & E. Pearson & J. R. Petrie & S. Philip & N. Sattar & F. M. Sullivan & P. McKeigue on behalf of the Scottish Diabetes Research Network Epidemiology Group. Hospitalised hip fracture risk with rosiglitazone and pioglitazone use compared with other glucose-lowering drugs. Diabetologia Epub 2012 Sept 4 DOI 10.1007/s00125-012-2668-0

Jackson CA, Jones NR, Walker JJ, Fischbacher CM, Colhoun HM, Leese GP, Lindsay RS, McKnight JA, Morris AD, Petrie JR, Sattar N, Wild SH; on behalf of the Scottish Diabetes Research Network (SDRN) Epidemiology Group. Area-based socioeconomic status, type 2 diabetes and cardiovascular mortality in Scotland. Diabetologia. 2012 Aug 15. [Epub ahead of print]

Kennon B, Leese GP, Cochrane L, Colhoun H, Wild S, Stang D, Sattar N, Pearson D, Lindsay RS, Morris AD, Livingstone S, Young M, McKnight J, Cunningham S. Reduced Incidence of Lower-Extremity Amputations in People with Diabetes in Scotland: A nationwide study. Diabetes Care. 2012 Sep 25. [Epub ahead of print]

G Laurie and E Postan, Rhetoric or Reaity: What is the Legal Status of the Consent form in Health-related Research? Medical Law Review 2012 1-44